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Nebraska Advocacy Day
Wednesday, February 22, 2017
Lincoln Community Foundation
5th Floor Conference Room
9:00 am– Advocacy Training and Breakfast
11:00 am– Legislative Visits
12:00 pm– Lunch
Your health. Your story. Your voice.
Join us in Lincoln for advocacy training on how to best talk to your legislators about bleeding disorders in Nebraska. We want to bring you and the Red Tie Challenge to the Capital to engage our law makers in the bleeding disorders community. Whether you have a lot or no advocacy experience, we want to see you there! We will give you all the tools and coach you in the best ways to talk to your representative. RSVP to Kelsey Cunningham to reserve your place.
Make your voice hear at NHF's Washington Days. Meet face-to-face with lawmakers and staff who shape national healthcare policy. Become more informed on critical issues that affect your continued access to quality care. Learn effective grassroots advocacy techniques.
Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.
Join us at Oak Lake Park for Tailgating Saturday, April 15th.
A Grilled Lunch will be provided at the park.
Parking included at the Stadium.
Event is free but you must pre-register!
Join us Friday, June 2nd for a fun night out on the green.
Location: Papio Greens Golf Center
11050 South 66th, Papillion, NE 68133
Registration includes your 18 holes of golf, dinner and a t-shirt. Proceeds benefit the Nebraska Chapter of NHF!
Participants Under 5 FREE!!!
Participants 6-17 @ $10
Participants 18 & Up @ $20
The Infusion: A Bloody Mary Mix Off
The Nebraska Chapter of NHF is hosting the 2nd Annual Infusion: Bloody Mary Mix Off!
Reigning Champs: Beyond Golf! will be defending their title against some of Omaha's best restaurants and bars.
Omaha bartenders face off on Saturday, June 24, 2017, to showcase their signature Bloody Mary recipes at the Ralston arena. Guests enjoy bloody mary samples from every bar, a delicious brunch buffet, interactive fun and the chance to vote for their favorite Bloody in Omaha. Two prizes will be awarded: Best Overall Bloody and Best Garnish. You won't want to miss this fun event. Must be 21+ to attend.
June 24, 2017 10 am- 1 pm
Early Bird Tickets: $35 (Until May 31st)
Individual Tickets: $40
Designated Driver Ticket: $20
Join us for a day of education and swimming at the Kroc Center
"Transitioning Through Life: Infant to Adult"
Speaker: Julia Mason, RN, CVS Speciality
Learn what to expect through each life change while dealing with a bleeding disorder in this informative session.
1:00-2:30 pm: Check in and Education
2:30 -5:00 pm: Open Swim at Kroc Center's indoor pool
Join us at UNO in the Community Engagement Center room 201 to learn how to put the fun in fundraising. This is your opportunity to learn from our great walk teams with some real life examples, while also getting to hang out with your friends/family.
Following our discussion we will be heading to Elmwood park to BBQ if the weather allows, otherwise we will be enjoying some subs at the Community Engagement Center.
So bring your team, your appetite, and ideas on how to bring your team to the top!
NHF Annual Meeting
Applications open for Travel Grants to NHF's Annual Meeting in Chicago / Abiertas las aplicaciones para becas de viaje a la Reunión Anual de NHF en Chicago. The National Hemophilia Foundation (NHF) is pleased to offer Connections for Learning Grants for those who want to attend its 69th Annual Meeting in Chicago, IL, August 24-26, 2017.
NHF’s Annual Meeting enables the bleeding disorders community to come together and exchange information on a wide variety of topics, from the basics of hemophilia and von Willebrand disease to the latest research breakthroughs and new drug therapies. Further, the three-day conference provides the premier opportunity for networking and support for individuals and families affected by bleeding disorders.
NHF has committed to providing funding to a number of families who want to attend its Annual Meeting. There, they can take advantage of the wealth of information and educational opportunities, and get to know other families coping with a bleeding disorder.
Eligibility: To provide a more inclusive Annual Meeting, NHF offers a limited number of Connections for Learning Grants to individuals and/or families with bleeding disorders who wish to attend the Annual Meeting for the first time or to returning families. While any returning individuals/families are welcome to apply, preference is given to those who have not been able to attend in many years. NHF would especially like to provide assistance to those unable to attend due to personal obstacles or other barriers. Awards will be based on these factors and on need.
Restrictions: NHF STAFF, BOARD MEMBERS AND CHAPTER STAFF ARE NOT ELIGIBLE TO APPLY. TO BE ELIGIBLE, APPLICANTS MUST RESIDE IN THE UNITED STATES OR ITS TERRITORIES.
What the Connections for Learning Grant Covers: The grant may be used to cover among the following (ONLY the type of assistance that you TRULY need):
Driving (Mileage – if you do not fly) *
*Please note: Ground transportation to and from the airport, and parking at your local airport are not covered by NHF.
** Approved applicants automatically will receive registration to the meeting
Applicants may apply for grants in one or more of these categories, for a maximum of three nights and four days.
Application Details: Please apply online. Your application must be completed online by 11:59PM Eastern Time on Friday, February 3, 2017.
Join us for an education day in Kearney, Nebraska on Saturday September 2nd. NHF will pay for lodging at the Hampton Inn for all participants the night of the 2nd. Additionally, all attendees will get tickets to the Nebraska State Fair in Grand Island on Sunday, September 3rd. We hope you will join us as we work our way through the State of Nebraska for this great event.
Join us for the social event of the fall with Nebraska NHF at Vala's Pumpkin Patch!
We will have the main pavilion again this year starting at 11 am-3 pm.
Visit with industry sponsors, fellow hemophilia families, have some lunch and s'mores and enjoy your day at the pumpkin patch.
We will be providing lunch and tickets to Vala's for members of our community. In order for NE NHF to provide your tickets you must meet one of the following criteria:
Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
Diagnosed as a carrier of hemophilia or another bleeding disorder
Caregiver of a person with a bleeding disorder
We will provide tickets for the immediate family of our affected members. While we love your extended family, its imperative for us to be conscious of our budget to offer more programs and events throughout the year. They are welcome to join you for the day at Vala's and tickets can be purchased for them online or at the gate. Thank you for your understanding.
The Nebraska Chapter of NHF is excited to announce an Industry Symposium where leading hemophilia drug manufacturers are able to come tell you all about their new products, programs and answer any questions you may have. NE NHF does not usually allow Industry to do branded talks but with all of the new changes on the horizon, we wanted to give them a voice. Please come join us for a morning of updates from our manufacturer partners followed by a Town Hall Meeting about our chapter and community as we move forward into 2018.
We want to hear your voice!
Nebraska NHF invites you to our 2nd Annual Town Hall meeting and Industry Symposium
In 2016, we hosted our first Town Hall meeting to hear your feedback regarding the direction and needs of the Chapter and our community.
We want to revisit the topics discussed in 2016, ensure we are meeting your expectations and plan for 2018.
NE NHF wants to do the best we can in serving the bleeding disorder community of Nebraska.
Saturday, November 4, 2017 * 9:00 am
Peter Kiewit Lodge, Mahoney State Park.
Breakfast and Lunch Included.
This program is free but we ask that you RSVP for food count.
Child care will be made available if the need is there. Please indicate if you will be needing child care as well.