Event Calendar

You’ll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.

2019

Advocacy Dinner Training

Monday, March 4, 2019
6:00 pm9:00 pm
Omaha Nebraska
Advocacy Dinner Training

Join us for an evening of Advocacy training. This will provide you with the tools to tell your story and learn how to advocate for your family and your bleeding disorder.

Dinner will be at Lazlo's Grill in Omaha, Nebraska

Advocacy Hill Day

Tuesday, March 5, 2019
9:00 am1:00 pm
Lincoln NE
Advocacy Hill Day

Join us for a morning of being briefed about the happenings in the Nebraska Legislature that are pertinent to the Nebraska Chapter. Following our briefing we will be meeting with senators while in session that are in committees that are important to the Nebraska Chapter. After the session is over, you will hopefully have a chance to meet with your representative in office.

Please RSVP as soon as possible in order to get a meeting set with your representative.

Proclamation Ceremony will be held at 11 am.

Family Education Weekend

Saturday, April 27, 20198:00 amSunday, April 28, 201912:30 pm
Embassy Suites Conference Center, Lincoln, Nebraska
Family Education Weekend

Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.

Mini Golf Fore Good

Saturday, June 15, 2019
6:00 pm9:00 pm
Papio Greens Golf Center 11050 South 66th, Papillion, NE 68133
Mini Golf Fore Good

Join us Saturday June 15th for a fun night out on the green.

Location: Papio Greens Golf Center

11050 South 66th, Papillion, NE 68133

Registration includes your 18 holes of golf, dinner and a t-shirt. Proceeds benefit the Nebraska Chapter of NHF!

Participants Under 5 FREE!!!

Participants 6-17 @ $10

Participants 18 & Up @ $20

Family Camp

Friday, August 9, 20195:00 pmSunday, August 11, 201911:00 am
Gretna 4-H Camp
Family Camp

Harvest Festival

Saturday, October 19, 2019
10:00 am12:00 pm
Roca Berry Farm
Harvest Festival

Join us for the social event of the fall with Nebraska NHF at the Pumpkin Patch!
We are headed just South of Lincoln to Roca Berry Farm!!

Visit with industry sponsors, fellow hemophilia families, enjoy snacks and enjoy your day at the pumpkin patch.

We will be providing treats and tickets to Roca Berry Farm for members of our community. In order for NE NHF to provide your tickets you must meet one of the following criteria:
Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
Diagnosed as a carrier of hemophilia or another bleeding disorder
Caregiver of a person with a bleeding disorder

We will provide tickets for the immediate family of our affected members. While we love your extended family, its imperative for us to be conscious of our budget to offer more programs and events throughout the year. They are welcome to join you for the day at the berry farm and tickets can be purchased for them online or at the gate. Thank you for your understanding.

Industry Symposium

Saturday, November 9, 2019
9:00 am3:00 pm
Peter Kiewit Lodge, Mahoney State Park

The Nebraska Chapter of NHF is excited to announce an Industry Symposium where leading hemophilia drug manufacturers are able to come tell you all about their new products, programs and answer any questions you may have. NE NHF does not usually allow Industry to do branded talks but with all of the new changes on the horizon, we wanted to give them a voice.

Peter Kiewit Lodge, Mahoney State Park.

Breakfast and Lunch Included

This program is free but we ask that you RSVP for  food count.

Child care will be made available if the need is there. Please indicate if you will be needing child care as well. 

Your parking pass will be made available at the main gate of entry through a will call list. Please register to ensure we have your name on the list for free entry into Mahoney State Park. They will direct you to the Peter Kiewit Lodge from the gate.