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Join us for a morning of education, breakfast and networking, focused on raising your child with a bleeding disorder.
Parents will be able to learn and share tips on tricks on what has worked for you!
Your registration includes entrance into the Henry Doorly Zoo and a continental breakfast. Space is limited to 60 individuals.
This event is focused on families with children 14 and younger.
Join Nebraska NHF and Genentech for an educational dinner.
Join us as we explore how to help maintain strong relationships through trust and connection. This session includes role play and tips to apply what you've learned.
The program was developed in partnership with the University of Pennsylvania (UPenn) Positive Psychology Center and will be facilitated by a UPenn trainer, an expert in their field with a PhD or Master's Degree.
Join us for an education day in Kearney, Nebraska on Saturday August 29th. NHF will pay for lodging at the Fairfield Inn for all participants the night of the 24th. Additionally, all attendees will get tickets to the Nebraska State Fair in Grand Island on Sunday, August 30th. We hope you will join us as we work our way through the State of Nebraska for this great event.
Unite for Bleeding Disorders Walk
The Nebraska Chapter of the National Hemophilia Foundation (NHF Nebraska) is proud to present our Annual Hemophilia Walk! We are proud to be a part of the National Hemophilia Foundation's Hemophilia Walk program consisting of over 35 walks nationwide!
Over 250 children and individuals in the state of Nebraska are affected by bleeding disorders such as hemophilia and vonWillebrand’s disease. Improvements in care and advancements in therapies are allowing people with hemophilia and other bleeding disorders to live a better quality of life than in years past, and we will continue this work until we find a cure!
NHF Nebraska welcomes Local Walk Sponsorships at all levels. Please invite your company and contacts to consider serving as a local walk sponsor. These sponsorships make a tremendous difference in the lives of our community – join the cause today. To learn more about sponsorships, visit our Walk Sponsorship web page or contact us at firstname.lastname@example.org or 402-889-0572.
Saturday, September 21, 2019, Chalco Hills Recreation Center
8:30-10 am Pancake Man
10:00am Walk Start.
OUR GOAL, YOUR HELP
This year’s fundraising goal is $50,000! There are many challenges to fundraising, but ultimately it’s about telling your story. Our most successful fundraisers are the ones that share why they walk.
Join us for our FAB 'Females and Bleeding' Conference, a regional women's retreat brought to you by:
Gateway Hemophilia Association
Hemophilia of Iowa
Midwest Hemophilia Association
Funding provided by Octapharma.
UPDATED DATE AND LOCATION
October 16-18, 2020- Margaritaville in the Lake of the Ozarks
Registration is limited so don't hesitate to register!
This conference is open to women aged 18+ served by one of the four host chapters.
In order to register you must be either:
*A Person with a bleeding disorder
*A Parent of a person with a bleeding disorder (or legal caregiver/guardian)
*A Carrier of a bleeding disorder
*A spouse of someone with a bleeding disorder
Space is limited and and such we are unable to accept those who are do not fall into a category listed above or aren't direct, daily legal caregivers of children with a bleeding disorder. Grandparents, aunts and additional family members do not qualify at this time. If you are unsure if you qualify, please reach out to your chapter.
We will be asking you to share a room- please indicate who you are willing to share a room with when you register.
Registration is $20 per person.
Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.