Event Calendar

You’ll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.


Pfizer presents Empowered: Tools for Self Advocacy

Friday, February 15, 2019
6:00 pm9:00 pm
Farmhouse Cafe

Join us for an education program with Pfizer, presented by Joe Schuch.

Empowered: Tools for Self Advocacy

Farmhouse Cafe and Bakery
3461 S 84th St
Omaha, NE

Nebraska Advocacy Workshop

Saturday, February 16, 2019
9:00 am3:00 pm
Omaha Marriott

Nebraska NHF is part of NHF's State Based Advocacy Coalition and is actively working on growing our advocacy program into a meaningful, year round advocacy venture. We understand that this cause is not limited to one day of legislative visits, but something that our organization needs to keep in the forefront of our work throughout the year. In 2019, we are adding an advocacy workshop the month before Bleeding Disorders Awareness month. We are inviting local senators to speak to us about effective communication, maintaining year round relationships with our law makers and what the 2019 legislative calendar looks like for Nebraska. We will also be speaking about the changing landscape of healthcare, nationally and locally. Nebraska voted to expand Medicaid in 2018 and this is a great win for our community but it comes with it's own challenges of implementing. Attendees will work on telling their story, fine tuning their elevator speech and practicing to meet with senators both in Lincoln and in Washington DC.

Funding for this workshop is being provided by Pfizer.

Hotels on Friday, February 15th are available for those traveling more than 120 miles to attend. Childcare will not be provided.

Power of Empowerment

Monday, March 4, 2019
6:00 pm7:00 pm
Lazlo's Grill- Omaha
Power of Empowerment

Join us for a dinner on Empowerment and an Advocacy Update.

"It can be a challenge to feel 'empowered' when we experience new or challenging situations. Luckily, empowerment is something we can learn, practice and embrace. Together, we will discuss ways of becoming more empowered such as acknowledging strengths, embracing individuality, creating safe environments, enhancing confidence and establishing supportive partnerships."

NHF staff will speak after about how to turn this empowerment into advocacy with the Chapter and beyond.

Advocacy Hill Day

Tuesday, March 5, 2019
9:00 am1:00 pm
Lincoln NE
Advocacy Hill Day

Join us for a morning of being briefed about the happenings in the Nebraska Legislature that are pertinent to the Nebraska Chapter. Following our briefing we will be meeting with senators while in session that are in committees that are important to the Nebraska Chapter. After the session is over, you will hopefully have a chance to meet with your representative in office.

Please RSVP as soon as possible in order to get a meeting set with your representative.

Proclamation Ceremony will be held at 11 am.

Pain in Hemophilia: Educational Dinner

Tuesday, March 19, 2019
6:00 pm9:00 pm
Fireworks Restaurant

Join us for an educational dinner provided by Bayer on Tuesday, March 19th, 2019 on Pain in Hemophilia.

Speaker: Jessica Lovercamp RN, BSN

Fireworks Restaurant | 5750 South 86th St | Lincoln, NE 68526

Please RSVP by March 7th.

VWD Education Day

Saturday, April 6, 2019
10:00 am2:00 pm
Beardmore Event Center
VWD Education Day

Join Nebraska NHF for an educational day focused on Von Willebrand Disease.

Speakers include:
Dr. James Harper, MD
Juli Mason, RN, BSN
April Littrell, RN

Nursing CEUs are included in this presentation

Family Education Weekend

Saturday, April 27, 20198:00 amSunday, April 28, 201912:30 pm
Embassy Suites Conference Center, Lincoln, Nebraska
Family Education Weekend

Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.

Summer PING at the Park

Saturday, June 29, 2019
1:00 pm3:00 pm
Eugene T. Mahoney State Park
Summer PING at the Park

Join us for an afternoon of education, snacks and networking, focused on keeping your affected kids and their unaffected siblings involved, engaged and connected to their peers and community.

Parents will be able to learn and share tips on tricks on what has worked for you!

Following the event, your family will be given activity tickets to use in the State Park for onsite fun!

Joint Women's Retreat

Saturday, July 13, 20199:00 amSunday, July 14, 201912:00 pm
Stoney Creek Hotel and Conference Center
Joint Women's Retreat

Nebraska NHF and Hemophilia of Iowa

are excited to announce a

Joint Women's Retreat!

Saturday, July 13th -Sunday, July 14th

Stoney Creek Hotel and Conference Center

Johnston, Iowa

The women's retreat will be for women over the age of 18 who have a bleeding disorder, are a carrier or are a care giver. Attendees must be in the service area of NENHF or HOI.

Registration is $25 per person and limited to 20 participants per chapter so register soon.

Includes shared hotel room, meals, education and so much more.

Family Camp

Friday, August 9, 20195:00 pmSunday, August 11, 201911:00 am
Gretna 4-H Camp
Family Camp

Kearney State Fair Outreach

Saturday, August 24, 2019Sunday, August 25, 2019
Kearney Hampton Inn and Suites
Kearney State Fair Outreach

Join us for an education day in Kearney, Nebraska on Saturday August 24th. NHF will pay for lodging at the Fairfield Inn for all participants the night of the 24th. Additionally, all attendees will get tickets to the Nebraska State Fair in Grand Island on Sunday, August 25th. We hope you will join us as we work our way through the State of Nebraska for this great event.

Harvest Festival

Saturday, October 19, 2019
10:00 am12:00 pm
Roca Berry Farm
Harvest Festival

Join us for the social event of the fall with Nebraska NHF at the Pumpkin Patch!
We are headed just South of Lincoln to Roca Berry Farm!!

Visit with industry sponsors, fellow hemophilia families, enjoy snacks and enjoy your day at the pumpkin patch.

We will be providing treats and tickets to Roca Berry Farm for members of our community. In order for NE NHF to provide your tickets you must meet one of the following criteria:
Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
Diagnosed as a carrier of hemophilia or another bleeding disorder
Caregiver of a person with a bleeding disorder

We will provide tickets for the immediate family of our affected members. While we love your extended family, its imperative for us to be conscious of our budget to offer more programs and events throughout the year. They are welcome to join you for the day at the berry farm and tickets can be purchased for them online or at the gate. Thank you for your understanding.

Teen Retreat

Saturday, October 26, 2019
9:00 am5:00 pm
Mahoney State Park
Teen Retreat

Join us for our first ever Teen Retreat with the Go Apes Ropes course and so much more!
Please register by October 4th so we can ensure reservations for the ropes course.

Industry Symposium

Saturday, November 9, 2019
9:00 am3:00 pm
Peter Kiewit Lodge, Mahoney State Park

The Nebraska Chapter of NHF is excited to announce an Industry Symposium where leading hemophilia drug manufacturers are able to come tell you all about their new products, programs and answer any questions you may have. NE NHF does not usually allow Industry to do branded talks but with all of the new changes on the horizon, we wanted to give them a voice.

Peter Kiewit Lodge, Mahoney State Park.

Breakfast and Lunch Included

This program is free but we ask that you RSVP for  food count.

Child care will be made available if the need is there. Please indicate if you will be needing child care as well. 

Your parking pass will be made available at the main gate of entry through a will call list. Please register to ensure we have your name on the list for free entry into Mahoney State Park. They will direct you to the Peter Kiewit Lodge from the gate.

Adversity, Strength and Resilience

Monday, November 11, 2019
6:00 pm7:00 pm
3 Margaritas
Adversity, Strength and Resilience

Join Nebraska NHF and Pfizer for an educational program featuring Joe Schuch, Patient Affairs Liaison.

Adversity, Strength and Resilience

A meal to follow- 3 Margaritas
North Platte, NE

The Science of Optimism

Thursday, November 14, 2019
6:00 pm7:00 pm
Dino's Grill
The Science of Optimism

Join Nebraska NHF and Genentech for an interactive workshop on The Science of Optimism: Staying optimistic while navigating change.

Join us as we discover how learned optimish can help us navigate life's transitions. The session includes interactive exercises to apply learning.
The program was developed in partnership with the University of Pennsylvania (UPenn) Positive Psychology Center and will be facilitated by a UPenn trainer, an expert in their field with a PhD or Master's Degree.

Hosted by Bobbi Sellers, MBA, MSN, RN
Genentech Hemophilia Community Clinical Educator

Getting Ready for What's Next

Wednesday, December 4, 2019
6:00 pm8:00 pm
Black Cow Fat Pig
Getting Ready for What's Next

Join Nebraska NHF and Sanofi Genzyme for an educational dinner.

Life is often full of transition...like moving up a grade, living independently, getting married, starting a new job starting a family or retiring. We'll discuss ways to help move smoothly from stage to stage, including tips for creating a support network, managing health needs, recognizing psychological factors, and staying informed about what resources are available.

December PING! and Holiday Party

Saturday, December 7, 2019
5:30 pm8:30 pm
Lincoln Children's Museum
December PING! and Holiday Party