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Join us for an evening of Advocacy training. This will provide you with the tools to tell your story and learn how to advocate for your family and your bleeding disorder.
Dinner location to be announced, it will be in Omaha.
Join us for a morning of being briefed about the happenings in the Nebraska Legislature that are pertinent to the Nebraska Chapter. Following our briefing we will be meeting with senators while in session that are in committees that are important to the Nebraska Chapter. After the session is over, you will hopefully have a chance to meet with your representative in office.
Please RSVP as soon as possible in order to get a meeting set with your representative.
Join us Friday, May 18th for a fun night out on the green.
Location: Papio Greens Golf Center
11050 South 66th, Papillion, NE 68133
Registration includes your 18 holes of golf, dinner and a t-shirt. Proceeds benefit the Nebraska Chapter of NHF!
Participants Under 5 FREE!!!
Participants 6-17 @ $10
Participants 18 & Up @ $20
Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.
Ever wonder how to stay positive when confronted with personal changes?
We all experience moments of change in our lives- some bumpier than others. We'll explore the concept of resilience in the face of change, for both children and adults, including ways to help adapt to difficult circumstances, factors that may help you, characteristics of resilient individuals and ways of fostering these skills within your family, at school and in the larger community.
Join us at UNO's Mallory Kountze Planetarium at 2:00 pm for education, networking and a look at the Stars.
2:00 pm- Registration and Industry Tables
2:30 pm- Education Session
3:30 pm- Planetarium Show
4:30 pm- conclude
Join us for an education day in Kearney, Nebraska on Saturday August 25th. NHF will pay for lodging at the Fairfield Inn for all participants the night of the 25th. Additionally, all attendees will get tickets to the Nebraska State Fair in Grand Island on Sunday, August 26th. We hope you will join us as we work our way through the State of Nebraska for this great event.
Overcoming Adversity and Achieving Endless Possibilities
Speaker: Jeff Kunkel- Hemophilia A Minnesota Community Member
Join us for the social event of the fall with Nebraska NHF at the Pumpkin Patch!
We are mixing it up and changing the venue! We are headed just South of Lincoln to Roca Berry Farm!!
Visit with industry sponsors, fellow hemophilia families, enjoy snacks and enjoy your day at the pumpkin patch.
We will be providing treats and tickets to Roca Berry Farm for members of our community. In order for NE NHF to provide your tickets you must meet one of the following criteria:
Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
Diagnosed as a carrier of hemophilia or another bleeding disorder
Caregiver of a person with a bleeding disorder
We will provide tickets for the immediate family of our affected members. While we love your extended family, its imperative for us to be conscious of our budget to offer more programs and events throughout the year. They are welcome to join you for the day at the berry farm and tickets can be purchased for them online or at the gate. Thank you for your understanding.
Join us for an all day Women's Retreat focused on education, reflection, crafting and pampering.
This day is open to all women with bleeding disorders, carriers and caregivers in our Nebraska bleeding disorder community.
The Nebraska Chapter of NHF is excited to announce an Industry Symposium where leading hemophilia drug manufacturers are able to come tell you all about their new products, programs and answer any questions you may have. NE NHF does not usually allow Industry to do branded talks but with all of the new changes on the horizon, we wanted to give them a voice. P
Peter Kiewit Lodge, Mahoney State Park.
Breakfast and Lunch Included
This program is free but we ask that you RSVP for food count.
Child care will be made available if the need is there. Please indicate if you will be needing child care as well.
Your parking pass will be made available at the main gate of entry through a will call list. Please register to ensure we have your name on the list for free entry into Mahoney State Park. They will direct you to the Peter Kiewit Lodge from the gate.