State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day at the state capitol. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by a day at the capitol where volunteers meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.
Putting a face to hemophilia makes a significant impact.
Monday, March 4th, 2019
Advocacy Education Dinner
Power in Empowerment, Bioverativ
6:00 pm- Lazlo's Omaha, NE
Tuesday, March 5th, 2019
Nebraska Hill Day
Agenda (currently working on due to construction at the capitol)
8:30 -10:30 am– Advocacy Update and Breakfast (Cornhusker Marriott- parking and breakfast will be included)
10:30- 11:00 am Walk Over to Capitol
11:00 am- Bleeding Disorder Awareness Month Proclamation
11:30-1:30 pm Legislative Visits at the Capitol
**Nebraska NHF will make appointments with your Legislator on the 5th if you would like. We will be happy to accompany you to these appointments as well. We want you to feel comfortable and proud of your advocacy.**
Your health. Your story. Your voice.
Join us in Lincoln for advocacy training on how to best talk to your legislators about bleeding disorders in Nebraska. We want to bring you and the Red Tie Campaign to the Capital to engage our law makers in the bleeding disorders community. Whether you have a lot or no advocacy experience, we want to see you there! We will give you all the tools and coach you in the best ways to talk to your representative.
Register for each event below!