We’re the leading resource for those affected by bleeding disorders. You can count on our organization to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.
Our programs are designed to provide relevant information to support people with bleeding disorders and their families with their ability to make informed choices.
Take a look.
Fundraisers and events help us raise awareness and generate crucial resources in support of the bleeding disorders community. Join us at our next event and see how you can get involved. Find something to do.
Our grassroots network is an integral part of our larger community. Team up with us and see what a huge difference a little bit of your time can make.
News & Events
The National Hemophilia Foundation’s (NHF’s) Nursing Working Group continues to revise and expand its Nurses’ Guide to Bleeding Disorders (NGBD). The latest chapter that has been updated is related to aging in the hemophilia population.
NHF has sent a letter to every member of the House of Representatives outlining concerns on the proposed legislation to repeal and replace the Affordable Care Act (ACA).
Call your Congressional Representative and share your concerns about AHCA.
This week, the House of Representatives is expected to vote on ACA repeal and replace legislation, the American Health Care Act (AHCA). We need everyone in the community to contact your Members of Congress this week to share our concerns about the bill.
What’s Good in the Bill?
The Partners in Bleeding Disorders Education Program is offering an educational module for health care providers at U.S. hemophilia treatment centers (HTCs) who want to learn more about the 340B Drug Pricing Program. The target audience for this activity includes nurses, pharmacists, pharmacy technicians and additional staff who want to learn more about the program’s relevance to HTCs.