NHF’s Community Voices in Research (formerly MyBDC) connects the experiences of people with bleeding disorders and their family members to researchers investigating improving treatments and care.
How does it work?
Benefits for the Bleeding Disorders Community
|Benefits for the Bleeding Disorders Community|
|Participants||People with bleeding disorders and their immediate family members and caregivers||
|Researchers||Healthcare professionals and investigators who wish to learn more about a specific area. All research requests are reviewed prior to acceptance.||The ability to send targeted surveys to CVR participants. All responses are reported back to them in a de-identified, aggregate (combined) manner to protect CVR participants’ privacy.|