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Join us for our first ever Men's Night!
This program is being supported by BioMarin and the Hemophilia Alliance Foundation.
6:00-7:00 pm- Gene Therapy Presentation and Appetizers (DJ Dug Out- Miracle Hills)
7:00-9:00 pm- Top Golf
Space is limited. Masks are required when not actively eating or drinking.
This event is open to men in the Nebraska Bleeding disorder community who are one of the following:
*Affected with a bleeding disorder
*Caregiver or parent of a child with bleeding disorder
Infusion: Bloody Mary Mix Off To Go
The Infusion Mix Off is BACK with a twist.
As we work towards our new normal, we have decided to host our Infusion: Bloody Mary Mix Off as a TO GO event this year! You get all the same amazing bloody marys, Tito's vodka and the ability to vote for your favorites all in the comfort of your own home.
This year's event will feature a To Go box for $45 that will include:
6 oz Bloody Marys from at least 6 amazing local bars and restaurants.
375 ml bottle of Tito's Vodka
and the ability to support the bleeding disorders community in Nebraska.
Boxes ARE limited.
Box pick up will be located at Spirit World from 9:00-11:30 am, Saturday, July 17th.
An optional virtual event will take place at 12:00 where you will get tasting notes from the bars, learn a little about bleeding disorders, show off your best at home garnish and hear from our local judges.
You can vote for your favorite bloody mary online!
Current participating bars include:
Caddy's Kitchen and Cocktails
Boxes will go live on June 10th, 2021 on Eventbrite.
Raffle tickets and donations are available the day of the event!
Unite for Bleeding Disorders Walk
We are back in person for our Unite for Bleeding Disorders Walk and Fundraiser.
We cannot wait to see you back in person as we raise funds and awareness for the Nebraska Bleeding Disorders community.
Register and start fundraising at www.uniteforbleedingdisorders.org
Join us for our FAB 'Females and Bleeding' Conference, a regional women's retreat brought to you by:
Gateway Hemophilia Association
Hemophilia of Iowa
Midwest Hemophilia Association
Funding provided by Octapharma.
UPDATED DATE AND LOCATION
October 8-10, 2021- Margaritaville in the Lake of the Ozarks
Registration is limited so don't hesitate to register!
This conference is open to women aged 18+ served by one of the four host chapters.
In order to register you must be either:
*A Person with a bleeding disorder
*A Parent of a person with a bleeding disorder (or legal caregiver/guardian)
*A Carrier of a bleeding disorder
*A spouse of someone with a bleeding disorder
Space is limited and and such we are unable to accept those who are do not fall into a category listed above or aren't direct, daily legal caregivers of children with a bleeding disorder. Grandparents, aunts and additional family members do not qualify at this time. If you are unsure if you qualify, please reach out to your chapter.
Registration is $20 per person.