Event Calendar

You’ll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.


VWD Series- Takeda

Tuesday, August 30, 2022
6:00 pm8:00 pm
Spezia 3125 S 72nd St
Omaha, NE 68124
US

Join Nebraska NHF and Takeda for a hybrid education session on Von Willebrand Disease: A to Z

Get to know the inheritance patterns and types of VWD and its various symptoms, including those that are specific to women. Treatment approaches for those with VWD will be described as well.

Dinner and education will be at Spezia in Omaha and broadcast virtually as well.
Virtual attendees will get information packets mailed to them after completion of the event.

Unite for Bleeding Disorders Walk

Saturday, September 24, 2022
9:00 am12:00 pm
Chalco Hills Recreation Center

We are back in person for our Unite for Bleeding Disorders Walk and Fundraiser.

We cannot wait to see you back in person as we raise funds and awareness for the Nebraska Bleeding Disorders community.

Register and start fundraising at www.uniteforbleedingdisorders.org

FAB Women's Conference

Friday, October 14, 20224:00 pmSunday, October 16, 202211:30 am
Mar

Join us at Females and Bleeding (F.A.B.) 2022, a women’s retreat with the Gateway Hemophilia Association, Midwest Hemophilia Association, Nebraska Chapter of the National Hemophilia Foundation (NHF), and Hemophilia of Iowa.

Sponsored by Octapharma USA, this weekend is for women 18 and older who are affected by a bleeding disorder in the following ways: 1) diagnosed with a bleeding disorder OR 2) a carrier of a bleeding disorder OR 3) a spouse of someone with a bleeding disorder OR 4) a parent or legal guardian of someone with a bleeding disorder to attend. Registrants must live within the Gateway Hemophilia Association, Midwest Hemophilia Association, Nebraska Chapter of NHF, or Hemophilia of Iowa geographic coverage areas.

This year’s F.A.B. Conference will be a hybrid event – meaning you have the option to attend in person at the Margaritaville Lake Resort OR online via Zoom! The focus will be education, personal growth, and networking. We have a great line-up of speakers and activities planned!
Your non-refundable $20 registration fee includes your room, meals during the conference, and conference materials. The registration fee will be collected by your affiliated organization. The deadline for registration and payment is September 9, 2022.

Harvest Festival

Saturday, October 22, 2022
9:00 am11:00 am
Roca Berry Farm

Join us for the social event of the fall with Nebraska NHF at the Pumpkin Patch!
We are headed just South of Lincoln to Roca Berry Farm!!

Visit with industry sponsors, fellow hemophilia families, enjoy snacks and enjoy your day at the pumpkin patch.

We will be providing treats and tickets to Roca Berry Farm for members of our community. In order for NE NHF to provide your tickets you must meet one of the following criteria:
Diagnosed with hemophilia, Von Willebrand Disease or another bleeding disorder
Diagnosed as a carrier of hemophilia or another bleeding disorder
Caregiver of a person with a bleeding disorder

We will provide tickets for the immediate family of our affected members. While we love your extended family, its imperative for us to be conscious of our budget to offer more programs and events throughout the year. They are welcome to join you for the day at the berry farm and tickets can be purchased for them online or at the gate. Thank you for your understanding.

Industry Symposium

Saturday, November 5, 2022
9:00 am3:00 pm
Peter Kiewit Lodge, Mahoney State Park

The Nebraska Chapter of NHF is excited to announce an Industry Symposium where leading hemophilia drug manufacturers are able to come tell you all about their new products, programs and answer any questions you may have. NE NHF does not usually allow Industry to do branded talks but with all of the new changes on the horizon, we wanted to give them a voice.

Peter Kiewit Lodge, Mahoney State Park.

Breakfast and Lunch Included

This program is free but we ask that you RSVP for  food count.

Child care will be made available if the need is there. Please indicate if you will be needing child care as well. 

Your parking pass will be made available at the main gate of entry through a will call list. Please register to ensure we have your name on the list for free entry into Mahoney State Park. They will direct you to the Peter Kiewit Lodge from the gate.

8031 West Center Road
Suite 304
Omaha, NE 68124

© National Hemophilia Foundation - Nebraska Chapter 2022

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