Event Calendar

You’ll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.


Nebraska Advocacy Day

Wednesday, March 20, 20246:30 pmThursday, March 21, 20241:00 pm
Dinner- Green Gateau, Lincoln, NE Advocacy Day- Nebraska State Capitol

State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day of advocacy. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by legislative meetings where advocates meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.

State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.

Putting a face to hemophilia makes a significant impact.

Wednesday, March 20, 2024

Advocacy Educational Dinner-

Green Gateau, Lincoln, NE

6:00-8:00 pm

Nebraska Advocacy Day

Thursday, March 23rd, 2024

**Nebraska NBDF will make appointments with your Legislator on the 21st if you would like to have an in person meeting and your legislator is available for in person meetings. We will set up virtual zoom calls between the 23-25th for those who prefer a virtual setting and accompany you to these meetings to tell your story and advocate for the bleeding disorder community here in Nebraska.

Your health. Your story. Your voice.

Join us for advocacy training on how to best talk to your legislators about bleeding disorders in Nebraska. We want to bring you and the Red Tie Campaign to the Capital to engage our law makers in the bleeding disorders community. Whether you have a lot or no advocacy experience, we want to see you there! We will give you all the tools and coach you in the best ways to talk to your representative.

World Hemophilia Day Dinner

Wednesday, April 17, 2024
6:00 pm8:30 pm

Join Nebraska NBDF and Sanofi for a World Hemophilia Day Celebration.

Upstream
514 S 11th Street

6:00 pm- 8:30 pm

The Bob Kerry Pedestrian Bridge will be lit red for World Hemophilia Day! Please join us after dinner as we check out the bridge.

Adults with Bleeding Disorders Conference

Saturday, April 27, 2024
141 N 9th St
Lincoln, NE 68508
US

Are you an adult living with a bleeding disorder? Are you a care giver who wants to know more about what to expect for your child as you age? This one conference will touch on issues and education focused on topics that affect the adult population in the Bleeding Disorder Community. This event will be held at The Graduate Hotel in Lincoln.

An entire teen event will take place at this Conference! We would love your teens to come to participate.

We look forward to sharing knowledge, connecting with our adult and teen community and having some fun along the way.

Registration for the Adults with Bleeding Disorders Conference is free and includes your hotel accommodations if you are coming in from more than 120 miles, food and child care.

The teen track alone also does not have a charge- if you would like a hotel, we do ask you to register for the full AWBD conference to guarantee your spot.

2024 Women's Retreat

Saturday, May 11, 2024
9:00 am3:30 pm

This event is for the ladies and those that identify as female. Join us for a day of community and connection! This event will take place at the Hilton Garden Inn at Aksarben in Omaha.
Space is limited so register today!

Resource Links

8031 West Center Road
Suite 301
Omaha, NE 68124

© National Hemophilia Foundation - Nebraska Chapter 2024

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