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Nebraska Advocacy Days
State advocacy days are one of the major highlights of local chapter advocacy programs. During these advocacy days, NHF teams with local chapters, volunteers, and other organizations to host a day of advocacy. With the pandemic, this year's advocacy ventures will be virtual. The event usually consists of a training session for volunteers where we provide talking points and engage in role-playing activities. Training is followed by legislative meetings where advocates meet with their elected officials to educate them about hemophilia and related bleeding disorders. Constituents may visit representatives for various reasons including to educate them, build relationships, thank them, and advocate for or against a piece of legislation.
State advocacy days give elected officials the opportunity to learn firsthand from affected individuals and families how expensive treating bleeding orders can be, and how important it is to have access to comprehensive care and continuity of care. Legislators learn how not having access to the proper treatment can be detrimental to the health of someone with a bleeding disorder, and potentially cost the state a lot of money in the long run.
Putting a face to hemophilia makes a significant impact.
Tuesday, March 21, 2023
Advocacy Educational Dinner- Lincoln, NE
Nebraska Advocacy Day
Wednesday, March 22nd, 2023
**Nebraska NHF will make appointments with your Legislator on the 22nd if you would like to have an in person meeting and your legislator is available for in person meetings. We will set up virtual zoom calls between the 23-25th for those who prefer a virtual setting and accompany you to these meetings to tell your story and advocate for the bleeding disorder community here in Nebraska.
Your health. Your story. Your voice.
Join us for advocacy training on how to best talk to your legislators about bleeding disorders in Nebraska. We want to bring you and the Red Tie Campaign to the Capital to engage our law makers in the bleeding disorders community. Whether you have a lot or no advocacy experience, we want to see you there! We will give you all the tools and coach you in the best ways to talk to your representative.
World Hemophilia Day Education Dinner
Join us for an educational dinner at The Old Mattress Factory Bar & Grill brought to you by Sanofi. We will enjoy good food and friends as we celebrate World Hemophilia Day and the bleeding disorders community on April 17th, 2023. After dinner, we will take a walk on the Bob Kerrey Pedestrian Bridge which will be lit up in red for this special occasion.
Adults with Bleeding Disorders Conference
Are you an adult living with a bleeding disorder? Are you a care giver who wants to know more about what to expect for your child as you age? This one conference will touch on issues and education focused on topics that affect the adult population in the Bleeding Disorder Community.
An entire teen event will take place at this Conference! We would love your teens to come to participate.
We look forward to sharing knowledge, connecting with our adult and teen community and having some fun along the way.
Registration for the Adults with Bleeding Disorders Conference is $25 and includes your hotel accommodations, food and child care.
The teen track alone does not have a charge- if you would like a hotel, we do ask you to register for the full AWBD conference to guarantee your spot.
Family Education Weekend
Education Weekend brings together families from all over Nebraska for a weekend of education and fun. Attendees will spend time visiting the exhibit booths and will select from a wide variety of education sessions. The youth who attend will have separate education opportunities as well as participating in fun activities.
This year's event will take place in Lincoln at the Cornhusker Marriott. There will be a teen track, a 7-12 track and child care!