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In honor of World Hemophilia Day, 9-chapters throughout the country are partnering for The Amazing Goosechase: Bleeding Disorders Edition. This multi-chapter scavenger hunt will run from April 10-16. Winners will be announced on World Hemophilia Day, April 17, 2021.
Goosechase is a virtual scavenger hunt in which participants compete in various missions. You can download the app to your phone to play. To complete a mission, you will select it from the list and follow the instructions to receive the allotted points. Some missions are answering questions, while others involve sharing photos or videos. Point amounts will vary. Each family that registers and completes at least one challenge will receive a $10 Amazon gift card.
Join us for a fun filled afternoon of education and art!
Building Skills to Address Bullying with Takeda
Followed by 'Tell a Tale Comic Style' with Multimedia Story Teller
An interactive art class to create your own Super Hero to combat bullying!
Use your ideas and her teaching skills to help you create your own comic booklet. You will be glad you did and even be inspired to create a series of stories about the comic hero you have created.
PING (Parent Information Networking Group) is intended for families with children under 14.
However, all ages are welcome to attend. Registration includes event box with all
materials needed for the Comic Book art
and drawing Session.
Please RSVP by April 2nd to receive event box.
Must be part of NE NHF's local bleeding disorders community to attend this virtual event.
Connect with your blood brothers and sisters to celebrate the diversity that makes the hemophilia community special. This all ages virtual event explores how blood unites us nd how unity can help us create brighter futures together.
This event includes an event box. Register today to get a box shipped to you!
Program made possible and supported by Sanofi Genzyne
Are you an adult living with a bleeding disorder? Are you a care giver who wants to know more about what to expect for your child as you age? This one day web conference will touch on issues and education focused on topics that affect the adult population in the Bleeding Disorder Community. Hear an update from our HTC, information on Gene Therapy and dive into the importance of mental health as an adult with a chronic condition. The bleeding disorder community has lost many members in the past year to suicide and depression and the importance of addressing the stigma around mental health is at an all time high.
We look forward to sharing knowledge, connecting our adult population to our community and having some fun along the way.
Event boxes will be sent to each household that registers before April 15th, 2021.
There will be an optional virtual pizza and escape room in the evening following the web conference.