We’re the leading resource for those affected by bleeding disorders. You can count on our organization to ensure your voice is heard. It’s with your help that we can make a difference. Learn more and get involved.
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Our programs are designed to provide relevant information to support people with bleeding disorders and their families with their ability to make informed choices.
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News & Events
Emicizumab-kxwh (HEMLIBRA, Genentech) was approved for use by the US Food and Drug Administration on November 16, 2017 for individuals with hemophilia A and inhibitors.
The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council (MASAC) has issued the latest revision to their most comprehensive treatment document, which is periodically updated to provide information on current bleeding disorder therapies available in the U.S. The new document, which is listed below, was approved by MASAC on April 19, 2018.
The designation is for people with hemophilia A without inhibitors.
Genentech has announced that the U.S. Food and Drug Administration (FDA) has granted “breakthrough” therapy designation to HEMLIBRA® for people with hemophilia A, without inhibitors. Breakthrough drugs are put on a fast-track approval program and given intensive guidance from the FDA. The therapy was co-developed by Genentech, Chugai and Roche.
NHF is expanding its work with the bleeding disorders community around the world.
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